Friday, I took a vacation day and Bonnie was able to spend a day in her office and I took Josh to his appointment at the clinic. They’re really happy about how great he’s doing. He does have a cold though, and the darn thing is kicking his butt, so none of us slept much this past weekend. It's still just a head cold and his lungs are still clear, but he's gone through boxes of Kleenex. He is doing better, although he’s not eating again. I’m starting to get a little concerned about his weight loss, but it’s not bothering the doctors yet, so who am I to worry. He was starting to eat, before this cold kicked in, but all weekend it was a battle to get him to nibble on anything at all.
Monday, Josh and Bonnie were down at the clinic all day where he was hooked up to the IV getting a 4 hour transfusion of IViG (intravenous immunoglobulin). His blood counts are still coming along. The whites were down a tad yesterday, but they thought that was just because he was fighting off the cold.
When they got home last night, he still had his four hour infusion with the magnesium. That got started late (about 6 p.m.) because we had to wait for a delivery of a new cocktail. They reduced the volume from two liters to one liter and added potassium to that as well as the magnesium. It turned out to be a long day for him.
His bones started to ache and he was running a low-grade fever while he was hooked up to the IV between 6 and 10 p.m. He was getting scared, compounded by not feeling good. It’s only when things start to build up on him that his anxiety really manifests itself and we get to see how much he really worries about all this. He never hit the magic number of 101 degrees where we call the doctor and when I gave him his Cellcept at 5:30 a.m. today his temperature was back to normal and he was feeling better. It’s been some long nights this past weekend, though. I’ll be glad if he (we) can start getting some uninterrupted rest by later this week.
On the upside, it’s beginning to look a lot like Christmas around the Fitch house. The tree is up and decorated and Bonnie got the snow village set up under it. The house is decorated and I got the outdoor lights strung last night.
Josh goes in Thursday for a bone marrow aspiration and I’m taking another vacation day to take him down for that. We’ll get a look at how this new marrow is forming and functioning. I’m certainly looking forward to that.